(717) 818-5307

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    • About Us
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    • What is MED13L
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    • Home
    • About Us
      • About Us
      • Our Logo
    • Resources
      • Links
      • Donate
    • MED13L Syndrome
      • What is MED13L

(717) 818-5307


  • Home
  • About Us
    • About Us
    • Our Logo
  • Resources
    • Links
    • Donate
  • MED13L Syndrome
    • What is MED13L

About us - Thirteen of Hearts

Our Story

 In 2012, our family was blessed with a beautiful little girl. Born at just 3.1 pounds, she spent her early days in the NICU. Through countless doctor visits and school meetings, she has shown us all that there are no disabilities in life —only challenges that can be overcome. 


 In 2023, our little girl a was diagnosed with MED13L Syndrome, a rare neurodevelopmental disorder affecting only a few hundred people worldwide. Through our journey—connecting with other parents of children with special needs, working with doctors and therapists, and engaging with the special needs community—we were inspired to do our part in giving back and supporting this incredible community. 

Our Approach

Through our network, social media, and community resources, we work to secure donations from generous donors and fundraisers. Every contribution directly supports children with special needs, helping them receive the opportunities and quality of life they truly deserve.

Our Impact

Through the power of community and collective giving, we ensure children with special needs are not left behind. Our impact is measured in brighter futures, stronger families, and a more inclusive society where every child has the chance to reach their potential.



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